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Monthly Archives: November 2020

Why do you stay away for so long,

when you know the warmth of my sand

And the colors I can paint the sky for you,

Lay just beyond the mountains?

Run to me, child, when you feel weak,

run to me when the world isn’t what you seek.

Don’t hesitate to drink me in, I have enough to give.

If your heart grows weary, I will help it live,

with the sound of waves lapping the shore,

the cool mist that kiss your cheeks at dawn,

And the gentle breeze easing you along.

Don’t let yourself get frozen in a moment,

Or life will be one long, and painful lament.

You had me feeling young again today.

Every ache in my bones seemed to forget

That the sun had risen three hours ago.

I felt lighter on my feet,

The laughter on my lips tasted sweet.

With every word you seem to heal

Every nerve that was screaming.

But how long can this last?

Are you here to stay?

Will you leave if I get too close?

Or is this something worth holding?

When was the last time you relied on five milligrams of anything?

It is such a seemingly insignificant amount,

That I go crazy trying to figure out

Why it refuses to let me move on.

Every time we try something new,

Its the same old story,

No appetite, joints are screaming.

The mornings are the worst,

Begging for the evening

Begging for the reason why.

Back in the ER, fill me up with more.

Ask me all the same questions,

No, I’m not from a broken home,

I just got a little booboo,

nothing you can’t fix.

As long as you have prednisone.

Back to where I started, at least, so it seems.

Riding that roller coaster once again.

The ups and downs come on like a sickness

Sometimes slow, others, it can be vicious.

At times I try to see it as a trial,

Something that can be beat.

A game that I can win without cheats

then I wake up in the morning in a daze,

Searching for the bottle through morning haze,

Take out that five milligrams and swallow,

Maybe it’ll be better tomorrow.

For anyone that is struggling with chronic illness, you are not alone. And it gets better. It is slow, and some days you might feel exactly like this poem, but it gets better. As you learn to adapt and find new ways to enjoy the things you used to. Don’t let the bumps in the road take you out. Hang in there 🙂